Nine-year-old Grace will eventually lose the ability to walk.
Jo and Carl are desperate to raise funds for Grace A rare condition means a child’s ‘clumsiness’ was actually something far more sinister. Grace Bucknell-Smith, nine, was falling over up to 30 times a day, which her family initially put down to being clumsy. But she also began experience pain and aching, and a constant tickling sensation in her arms, fingers, knees and toes.
Jo said: ‘We had our answer but couldn’t do anything about it but just watch these diseases take over her body.’ Over the years, Grace’s family has had to watch her condition get worse. Even though they’ve tried orthotic boots, ankle and foot splints, serial casting, Botox, and physiotherapy, nothing is staving off the diseases.
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