Little Grace-Louise Darroch was just seven weeks old when she suffered her first seizure.
A Renfrewshire family is inviting Buddies to join them for a cup of ‘positivi-tea’ to raise funds for a brave youngster suffering a rare condition.
The rare disorder affects around one in every 42,000 people and is a neurodevelopmental condition. CDKL5 is a gene that provides instructions for making a protein, and CDKL5 deficiency can cause increased risk of seizures. Download the free Renfrewshire Live app today Renfrewshire Live, the new free app dedicated to bringing you around the clock breaking news, is now available to download.
There is also a dedicated St Mirren section that will follow every kick of the ball with the Buddies.Grace-Louise’s aunt is now organising a Princess Warrior tea party to raise funds for intensive therapy that will allow Grace-Louise to reach her goals. “Doctors have said that with intensive therapies, she might be able to achieve more goals but she will need to travel for this expensive treatment as she can’t get it here in Scotland.”
Linda added: “Grace-Louise is an inspiration and holds a place in the hearts of everyone she meets. Her mum and dad have called her a ‘Princess Warrior’ since she was a tiny baby.
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