Very few people have been officially diagnosed with UHS
The mum of a toddler who is believed to have the same rare condition as Albert Einstein says she struggles to style her hair because of how 'crazy' it is. Lydia Bunch's daughter Nellie Butler, two, is thought to have Uncombable Hair Syndrome - a rare disorder that means your hair is frizzy and can't be combed flat.
"It is quite hard to brush but luckily it's easier to brush after she's had a bath. It's just hard to get it in a ponytail because it's just everywhere, so you can't really do that." "Then when she was around nine or ten months old, her hair started becoming really light and almost frizzy." "Apparently it is genetic, but I've got straight her and her dad has got curly hair so nothing like Nellie's."