'The grief almost feels fresh to them every day, almost like they're re-experiencing it all over for the first time.'
"Danny is medically fragile. So, the virus itself would be pretty devastating to him. So we have that we're contending with," said Megan Scully, a mother of three in Washington, D.C., whose 4-year-old son has a rare brain disorder that puts him at increased risk from COVID-19."One of the fights for us is keeping the 'front line' for us here at home instead of possibly having to go to the hospital," said Chris DeBatt, Danny's father.
"One of the things that he has right now is a compromised immune system," Gorski said."It's pretty stressful worrying about trying to keep him healthy and safe by not exposing him to anything really."The sobering, cloistered reality has been made more difficult without the support network many parents of young special needs kids have come to rely on: home health aides, therapists, coaches and teachers.
"He definitely misses his friends," Foster said, with Jeremiah by her side. She, like many parents, is scrambling to arrange Zoom or Skype video-chats with familiar faces to try to recoup a sense of normalcy. "I can't do a full load," said Winchell, describing herself as someone who prides herself on working hard and being able to juggle priorities.The family kitchen table has become a pandemic command centers for millions of American parents finding new ways of maintaining their day jobs while educating and entertaining their children at home.
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