'She could be walking along, or standing, and just hit the ground'
A teenager who was diagnosed with a condition and told her distressing symptoms would 'fizzle out' is now in a bid to raise awareness.
She said: "Erin started experiencing various symptoms back in Primary 7, and with FND, it can present in lots of different ways. It has a really broad range of symptoms. But at the start, we had no idea what was going on. "Over the last few years, her symptoms have progressed. The blackouts evolve to full blown seizure and she took her first seizure about four years ago at home. It was a really frightening experience for everyone. She could have seizures which look to the layperson as an epileptic seizure, quite convulsive, but she could have other ones where she would just black out.
Erin was initially diagnosed with NEAD which comes under the umbrella term of FND . Northern Ireland has over 1500 people living with Functional Neurological Disorder and while it is a common condition, information and awareness in Northern Ireland is low. "Erin was then promptly discharged. It is a very difficult position to be in because the issue is, there is a real lack of knowledge within neurology services about the condition and because there is no physical problem to see, it is almost an unbelievable situation to be in.And while going through what she has, Erin is determined to help others with FND, and to help the charity FND Matters NI, who have been a lifeline to her and her family.
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