An Ahwatukee family is pushing for a proposed law called 'Right to Try for Individual Treatments' after they had to travel abroad to get medical care for their daughter who suffers from a rare disease. FOX 10's Stephanie Olmo reports.
AHWATUKEE, Ariz.Life for the Rileys has been nothing short of challenging these past two years. Having to travel to Italy to get a lifesaving treatment for their daughter, but they're hoping to soon get help here at home.
"It affects the mileage of the brain, it affects the nerves so really quickly our daughter Olivia lost her ability to walk, talk, she can no longer eat on her own and the average life span is age 6 ." "There were appointments like the process of Leukapheresis where you pull out the stem cells in order to take them to the lab fix them essentially and put them back into her body but after Leukapheresis she has to go to chemo for 4 to 5 days after the chemo they put the renewed stem cells back in her body just through an IV."
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