Q&A with longCOVID patient, researcher: Treatments lagging
For Julia Moore Vogel, PhD, a cup of peppermint tea marked the moment her life would change forever.
As a COVID-19 patient-researcher who still struggles with fatigue and migraines, she has learned to cope with her condition. She directs the Participant Center for theResearch Program, a National Institutes of Health collaboration to build the largest, most diverse health database in history. She relies on a practice called pacing, which helps conserve physical, mental, and emotional energy, to avoid making her symptoms worse.
"It's hard to remember what it was like at that time. There were so few treatments, it was all about rationing ventilators, and it was absolutely terrifying at the time to just not know what was going to happen."/chronic fatigue syndrome , one of the really common diagnoses that come out of long COVID. So, that's the biggest thing for me to manage now, and the main management is pacing.management.
"It was my first time working with people who have long COVID on a big project. The understanding that we had of each other [where] one of us might say, "There's just been so much progress that's been made in the past couple of years. And then thinking about the progress on long COVID in general, the other things that's important to acknowledge is all the work that's been done on other post-viral illnesses that present very similarly to long COVID in many patients, ME/CFS and postural orthostatic tachycardia syndrome ."
"It really underlies the importance of vaccination, given that it can affect both the pregnant person and child. There is early evidence of development delays if there's infection while the child is still gestating. So, I think it underscores the need for vaccination to reduce that risk. "So many folks are not getting the care that they need. Because these types of conditions haven't been seen as much by primary care providers, physical therapists, etc, there's so much more education that's needed.
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