'As a disability influencer, one of the things I have struggled with is non-disabled parents or caregivers of kids who have disabilities or chronic conditions speaking for – and often over – disabled people.' ✍️ SamanthaRenke writes for MetroOpinion
This type of parent is very vocal and unapologetic when it comes to telling the disability community how it should be done
This type of parent is very vocal and unapologetic when it comes to telling the disability community how it should be done – which language they prefer to use or how their experience is the same as ours. She was also my support worker at university, designated driver, personal assistant and nurse. This role meant that my mum almost vanished as she had no social life outside the realms of me.
So the question is: How can non-disabled parents explore the world of disability without appropriating their kid’s disability identity? Disability identity is so rich – it’s a culture, history, sense of self and self-worth. Parents and caregivers absolutely have a place and a role within that identity.
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