Henry was diagnosed with Rett syndrome, a genetic brain disorder that does not have a treatment or cure, as a toddler.
, Rett syndrome can cause loss of use of the hands, problems with walking, seizures, slowed brain and head growth and intellectual disability.
“MECP2 mutations cause Rett syndrome, a disorder that typically affects girls after their first birthday, robbing them of learned skills and leaving them with cognitive deficits, loss of speech, and a variety of motor difficulties,” the Texas Children’s Hospital page explains.
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