My Endometriosis Has Me Constantly Dealing With New, Bizarre Symptoms: It’s Lonely, but I’m Fighting
in which the tissue that lines the inside of the uterus grows outside of the uterus, which can cause intense pain and heavy menstrual bleeding.Throughout my college years and my graduate program in occupational therapy, I somehow got through the worst days of the month with heating pads and bed rest if I could, and focused on the fact that the pain would be over in a few days.
It wasn’t until age 27, when I began feeling intense, stabbing pain—even when I wasn’t having my period—that I went to urgent care for help. The pain was so overwhelming, I couldn’t move. I’d never felt anything like it before, and because of the location of the pain in my abdomen, the doctors initially thought I had appendicitis. But an MRI at the emergency department showed that I had a large cyst on my ovary.
The surgery helped, and I was put on hormonal birth control to treat my symptoms, but I was still in terrible pain. So after finding a new doctor, I had a second surgery several months later, where even more endometrial tissue was removed. By that point, though, my autonomic nervous system , had begun to falter, and I was diagnosed with dysautonomia, which is an umbrella term used to describe a disorder of the autonomic nervous system.
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