This as-told-to essay is based on a conversation with Sierra Domb, founder and CEO of the Visual Snow Initiative, about her journey with visual-snow syndrome – a neurological condition where people see tiny, snow-like flecks in their vision.
Oftentimes, people with visual-snow syndrome go to an eye doctor.
title="YouTube video player" frameborder="0″ allow="accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share" allowfullscreen="allowfullscreen">When I first experienced the onset of visual-snow syndrome, I wasn't even aware there were other people out there who had it too. Researchers have discovered it may affect an estimatedto 3 percent of Earth's population.
When I first experienced visual snow, it was debilitating. Over time, it's improved. For some people it's mild from the start, and it doesn't affect their daily life, and for some people it does. Many function normally, and for others it can be life-altering.
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