'The prognosis is very bleak because it is so rare they don't know how to treat it'
A man's family was left shocked after he suddenly died of a rare and aggressive disease that 'nobody has ever survived'.
After Jason began to get sores on his body, he changed to different doctor who then ran some tests, including CT scans, MRI scans, and cameras in his body - searching for cancer which doctors believed was a possibility at the time. Six weeks ago, Dean took Jason to Pontefract hospital because he had been left unable to walk or even hold a pen to write with.
Dean said: "The prognosis is very bleak because it is so rare they don't know how to treat it, its just a case of dealing with other specialists. Its a game of trial and error." Dean and his family wanted to share Jason's story to try and help others out there to beat this rare condition by creating awareness. Dean said: "It was such a big relief when we knew it wasn't cancer but then this extremely rare condition has took his life.
"I cant get over it and my wife is devastated, she can't stop crying. It was such a relief when he didn't have cancer, then to find out it was something they couldn't fix - there has been no survivors from it and its so rapid they don't have time to treat it. It's a game of trial and error, the next person who has it they will test drugs on them to see what works.
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