Poppy Flambert, 12, lives in severe pain every day - with the pain so chronic that at times she has to use a wheelchair and she can only attend school part-time.
Her mum Georgina Flambert said that - after she developed a skin infection on her toe from using a hot tub - the youngster was prescribed antibiotics.
According to the NHS, CRPS is a poorly-understood condition where a person experiences persistent severe and debilitating pain. Most cases are triggered by an injury and the pain usually only affects one limb but it can spread to other parts of the body. The skin of the area affected can also become sensitive to touch. It can improve over time, but for some people with CRPS, they can experience the pain for many years.
Georgina said a lot has happened since that diagnosis in Easter 2021 when Poppy was just 10. She said: "Sometimes the redness would get really bad then look ok. It gets very cold to touch. Even to go outside, if a drizzle of rain touches her foot, she screams in pain. Georgina said: "It's so intense that even a feather touching her is like a knife stabbing her. She described drizzle on her foot as like having sharp pins dropped on her foot.
"After this, at Easter 2022 she spent four days in the Bath centre for pain services, having intense psychology and physio and they helped us to get her into remission after a couple of months. Unfortunately this didn't last and around three months later she hit her hand and it locked in a very bent position and it all started again. She says to me that it's hard 'having to pretend to be okay all of the time when I want to scream'.
Georgina said: "She was all lit up and happy, we were like this is brilliant, when we came back home after about a week or so then the pain started to come back. However it did do something, her ankle was all locked and that is fixed back to normal now. She was wearing a brace and that is moving again now."
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