'She's a real incredible little girl'
A father-of-two living in Lincolnshire has described living with motor neurone disease as being “very lonely” and like a “ticking time bomb” as he continues his battle against the condition.
He has knowingly lived with MND since February 14, 2022, but his first symptoms appeared on December 28, 2020 when he suddenly found he could no longer lift his left foot. Les used to love going out walking and would carry his photography equipment with him , but now when he must used his mobility scooter or wheelchair.: “The neurologist told me the results of the scans and did a medical examination there and then. She said she couldn’t find anything wrong in the scans other than normal, age related, degeneration in the discs of my back other than age related.
“My wife and I had to tell our boys and friends about it and slowly the diagnosis hits home this is where you are. Your most natural thing to do is to start finding out about it because somebody has given you a death sentence so need to do what you’re dealing with. I decided to read things online which frightened us both.”
Between 1980 and 2010 Les worked as a police officer for West Midlands Police before spending six months starting his own allotment. Les loves village life and the fact that people always stop to say hello, while being able to hear the Typhoons from RAF Coningsby. Les is “desperate not to become wheelchair bound so I will do everything possible to shower and dress myself…even if that takes me an hour to achieve and totally washes me out for some time”. He no longer wears clothing with buttons and has thick long socks because the circulation has gone in his left leg.
The profile of the disease has been in the public eye much more in recent years due to former professional rugby stars Rob Burrow, Doddie Weir, and Ed Slater being diagnosed with MND. Sadly, Doddie lost his battle with MND on November 26, 2022.
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