SINGAPORE — Having people steer clear of her is part of the everyday experience of Ms Nur Nabilah Zakaria and her mother Sharifah Zakaria.
Just recently, while taking public transport, her 61-year-old mother recalled that a child had stared hard at the lumps on her face and burst out crying.
On her part, Ms Nabilah, 29, has also lost count of the times people have ridiculed her and stared at her because of her physical appearance. As time went by, more visible tumours appeared, covering Ms Nabilah’s face and body. They are on her feet and palms as well. She hopes that what she is going through will help people understand the genetic condition better and be kinder in their words and actions.
People with NF1 are almost 10 times more likely to develop any type of cancer during their lifetime than the general population, she added.Dr Fong recommends that children whose parents have NF1 be assessed clinically for signs of the genetic disorder.An NF1 diagnosis may be made when doctors observe two or more of the following features:Neurofibromas or plexiform neurofibroma A fault in the NF1 geneMs Nabilah’s older sister, 35, did not inherit the faulty gene from her mother.
She recounted: “Someone from the human resource department asked me why my skin is like that and whether it is a contagious skin disease. I felt very ‘heart pain’ .”After being questioned by the human resource personnel during the internship stint, she told my lecturer about it and he “defended” her by writing an email to the personnel, she said.Ms Nabilah met her husband, Mr Muhammad Firdaus, 34, a senior technician, at a school event. That was in 2011.
“To me, as long as my child can walk and talk, I consider him healthy,” he said, as his active three-year-old ran around him in circles.NF1 symptoms are different for each person and they can vary in severity.
日本 最新ニュース, 日本 見出し
Similar News:他のニュース ソースから収集した、これに似たニュース記事を読むこともできます。
Local firms rally in support of Tchoukball Singapore’s bid for success - Singapore NewsSingapore aims to reach finals of 2023 World Youth Tchoukball Championships to be held here in July
続きを読む »
Sustainable, genderless kidswear: This Singaporean mum's designs goes the extra mile“Our minimalist unisex apparel and accessories are designed for versatility and hyper functionality,' said Young by Graye's Xie Qian Qian.
続きを読む »
13 Places Serving The Best Bak Chang In SingaporeCelebrate Dragon Boat Festival 2023 by savouring these best bak chang (also known as bak zhang, zongzi, or rice dumpling) in Singapore. Singaporeans would be familiar with this popular seasonal dish. Bak chang is the Hokkien name for a glutinous rice dumpling, which is made by wrapping meat (bak) in a dumpling (chang). The dumpling is then encased in a banana leaf, and cooked either by steaming or boiling. The dish is traditionally consumed around the Dragon Boat Festival, which falls on 22 June
続きを読む »
Morning Digest, May 25 - Singapore NewsTrending stories while you were asleep
続きを読む »
Good Samaritan showered with praise for returning lost money bag to cyclist - Singapore NewsFinder contacted cyclist's wife whose phone number was in the bag
続きを読む »
Singapore faces 'high risk' of technical recession amid external uncertainties, say economistsWeaker exports amid lacklustre external demand and a limited boost from China’s reopening are among the uncertainties ahead for Singapore's economy, according to private-sector economists.
続きを読む »