At 30 years old, this COVID19 “long-hauler” says fighting the virus for months has completely wiped her out. longcovid
Worried she was losing her grasp on reality, Bishof Googled “COVID-19 symptoms for weeks” and, for the first time, she realized she wasn’t alone. Anby Ed Yong shared the stories of self-described COVID-19 “long-haulers” and led Bishof to discover and join a number of support groups on Facebook.
“I started asking questions and was blown away by all of the responses. So many people were dealing with symptoms like mine and even stranger symptoms for months with no treatment, no game plan, and no idea when or if these issues will ever end.” Worse yet, many of them had family members, friends, and doctors who didn’t believe their symptoms were real.
As Bishof searched for treatment and read others’ stories online, she felt compelled to take action and created an unofficial survey that garnered more than 1,500 responses from fellow long-haulers, primarily in the U.S. and U.K. “Part of the push for this was the hope that people could bring this to their doctor and show them that you’re not alone. If you’re one person going to your doctor, they may dismiss you.
In a climate where medical professionals are often overwhelmed in the fight against an entirely new virus, long-haulers can vindicate and empower each other when doctors fail to listen, can’t take on new patients,Lisa O’Brien, a 42-year-old financial analyst who has been sick with COVID-19 symptoms for more than 135 days, suspected she hadafter reading her friend Hanna’s story in an online support group.
But one week later, she went to the ER and insisted on a blood test recommended by Hanna. In a series of two appointments, doctors found two blood clots and prescribed blood thinners. “Shockingly, there were four of us that found blood clots in our lungs that same week,” O’Brien said in an email.
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