“I’m a young woman who loves makeup and fashion and wears high heels and has red lips, has tattoos, all of those things we never see blindness portrayed as. And they’ll say, ‘Well, you’re not blind.’”
When Molly Burke lost her vision at 14, teens bullied her. She had been speaking publicly at events since she was 5, but the taunting and harassment stopped her from wanting to continue.
“I thought back to the 14-year-old who was really the reason I’m doing all of this, and I wanted to be the role model that I didn’t have when I needed it,” she said. “Where did 14-year-old Molly turn to when she had no friends anymore and she needed someone? I turned to YouTube.” So, she spent most of her childhood preparing to lose her vision, which went away little by little until, at age 14, she lost the majority, leaving her able to see light and shadow. But it wasn’t until she was 16 that she learned what type of retinitis pigmentosa mutation she had. Knowing wouldn’t have changed any of her treatments, but it would have better prepared her to lose her vision as a teen.
She wants people engaging in her social media to learn something about blind people to lessen the discrimination and myths she and others face. There are many myths she wish people didn’t still believe. She knows that people can’t understand what it’s like to not have their vision, but that doesn’t make blind people helpless.
“There’s a nuance to disability. We are all unique. 90% of blind people have some remaining vision," she said."If somebody says they’re blind and then they say something’s green, they might have been able to see that. That does not make them less blind.”“My favorite is when people are selfish enough to be petting my dog and then say to me, ‘I know I’m not supposed to do this, but I really love dogs,’” she said.
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