The U.S. National Institute on Aging (NIA) is funding a 6-year, up to $300 million project to build a massive Alzheimer's research database that can track the health of Americans for decades and enable researchers to gain new insights on the brain-wasting disease.
The database could help identify healthy people at risk for Alzheimer's, which affects about 6 million Americans, for future drug trials. It also aims to address chronic underrepresentation of people of color and different ethnicities in Alzheimer’s clinical trials and could help increase enrollment from outside of urban academic medical centers.
"We didn't design it for that purpose," Silverberg said, but "it might be possible" to use it for that purpose. During the pandemic, the U.S. lagged other countries with national health systems in being able to analyze patient data for COVID-19. Several stakeholders including Medicare and patient advocacy groups the Alzheimer's Association and UsAgainstAlzheimer's took part in a workshop last spring to discuss the design of the platform.
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