My son's illness leaves me feeling out of control, every second of every day. It’s the same feeling that I now recognize in people around the world, as the threat of the coronavirus (and its resultant COVID-19) spreads.
One day this past January, I got up, got dressed, went to the gym, and by the time I went to bed that night, my 8-year-old son Bennett had been sedated in our local children’s hospital after having back-to-back seizures for hours on end. Bennett has epilepsy with cardiac involvement and has at times seized so severely that it’s prompted a team of doctors to medically sedate him in an effort to protect his brain neurons from death.
But like many people, this is my first pandemic. And after going to three different stores, and my husband rushing home from work early to check a few others, we still weren’t able to purchase anything that we normally buy to protect our son. The sheer chaos engulfing our stores is a scene right out of a movie — as if a post-apocalyptic crowd is shopping on Black Friday, mobbing, and devouring everything in sight.
So where does this leave children like mine? And everyone else who is immunocompromised or has an underlying health condition? There is more than one way to be at-risk for COVID-19. It’s something I’m learning all too well as I watch the foundation that keeps my son alive crumble beneath his feet. Like the mom I noticed on Facebook, begging for Lysol wipes so that she could get her child, who is fighting cancer, safely to her chemotherapy treatment.
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