Book review: The memoir 'Remedies for Sorrow' documents author Megan Nix's quest to take on a little-known disease, and the medical establishment, after her newborn daughter's diagnosis.
“Remedies for Sorrow: An Extraordinary Child, a Secret Kept from Pregnant Women, and a Mother’s Pursuit of the Truth”When Megan Nix delivered her second child, in 2015, the baby was small and failed her newborn hearing test. Nix and her husband soon learned about a virus known as cytomegalovirus, or CMV, that Nix had been infected with while pregnant.
The numbers are indeed shocking. Congenital CMV — that is, the viral disease transmitted to infants before birth — is the leading cause of birth defects and developmental delays in the United States. Approximately one out of every 200 babies is born with it, and about a fifth of those will face lifelong disabilities. A baby may look normal but exhibit progressive symptoms over time.
But she did far more than that. She read every scientific report related to CMV, from everywhere in the world. She interviewed and confronted doctors. She contacted, met and befriended other CMV mothers and their children. She lobbied state legislatures. And she wrote, first in newspaper articles and opinions, eventually in this full-length, personal, well-researched and important book.
For all its medical information and alarm call to parents and health professionals, the great strength and beauty of “Remedies for Sorrow” lies with Nix’s superb writing and the context she brings to her story. A graduate of the University of Alaska Anchorage’s MFA program, Nix is a tremendous narrative writer, infusing every page with story, never losing a reader in a thicket of data, facts or jargon.
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