'As a child I couldn't play in the snow, now I dream of going to the North Pole'

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'As a child I couldn't play in the snow, now I dream of going to the North Pole'
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'As a child I couldn't play in the snow or have a cold drink, now I dream of going to the North Pole'

As her friends played happily in the snow as children, Gloria Adebisi Ademolu couldn't join in with them and had to stay indoors. She couldn't even sip a cold drink.

"The best thing is now I can say, 'okay, now I can start living a life that I actually do want to live without fear of my condition triggering itself'." "I sat there and thought - I really want to go to the North Pole. Even though it's cold. I want to be there - I want to see it physically," said Gloria.

"You can look at someone and just because they're smiling and laughing, it can seem like they're not in pain, but if you walked a day in my shoes, you'd know how it feels on the inside. Even if I'm meeting my friends outside, I'll go home if there are large crowds. Then in May 2022, Gloria started a new treatment at Manchester Royal Infirmary that has significantly improved her quality of life - and allowed her to rekindle her long-cherished dream. The new treatment, crizanlizumab, is delivered by a transfusion drip and binds to a protein in the blood cells. It prevents the restriction of blood and oxygen supply that leads to a sickle cell crisis.

"I am very pleased that we are able to offer this treatment to our patients with sickle cell at Manchester Royal Infirmary, and the feedback from patients so far, including Gloria, has been very positive. Crizanlizumab has been shown to reduce the frequency of acute sickle pain crises. Sickle pain crises can be severe and unpredictable and often result in hospital admission and patients can become very unwell.

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