The sociodemographic characteristics of Black and Hispanic children with SLE appear to play a strong role in influencing the severity of disease in these patients, according to studies presented at PRSYM2023. RheumTwitter
NEW ORLEANS — The sociodemographic characteristics of Black and Hispanic children with systemic lupus erythematosus appear to play a strong role in influencing the severity of disease in these patients, according to two studies presented at the Pediatric Rheumatology Symposium 2023.
"Several demographic and social determinants of health parameters influenced disease severity at levels that reached statistical significance, including insurance status, race/ethnicity, referral source, PCP [primary care provider] availability, primary language, and transportation needs," Emily Beil, MD, a pediatric rheumatologist at Texas Children's Hospital in Houston, told attendees at the conference, which was sponsored by the American College of Rheumatology.
Black and biracial children had higher SLEDAI scores at presentation. Non-Hispanic White children were less likely to have a social work consult, compared with other racial/ethnic groups . Central nervous system involvement was most prevalent among Black patients . Cyclophosphamide was used most often for Black and biracial patients.
She presented findings regarding the first of three aims in the study, which was to describe the baseline clinical, demographic, and socioeconomic profiles of childhood lupus patients at the two centers. The two other aims are to examine genetic factors potentially linked to poor outcomes in the cohort and to assess the mental health status of the population.
Being mindful of these risk profiles can help doctors in asking about patients' support at home and their families' education, beliefs, and cultural practices, Ciurtin added."Helping them to engage and be involved in decision-making is probably the most important" aspect of learning this information about families, she said.
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